Sufjan Stevens, the 48-year-old singer-songwriter, revealed on Instagram that he has been diagnosed with Guillain-Barre Syndrome, an autoimmune disease. In a post accompanied by a photo of himself in a wheelchair, recovering in the hospital, Stevens shared his health update. Guillain-Barre Syndrome, which has recently been linked to Covid-19, is a rare disorder where the immune system attacks the nerves, resulting in weakness and tingling in the hands and feet. The symptoms can progress and lead to full-body paralysis.
Stevens informed his fans that he is “working really hard to get back on my feet” and has had to “learn to walk again.” Unfortunately, his health condition has prevented him from promoting his upcoming album, Javelin, which is set to be released on October 6.
The Grammy-nominated performer expressed his enthusiasm for sharing new music but explained that his hospitalization has made it impossible for him to participate in press and promotional activities for the album. In describing his experience with the autoimmune disease, Stevens recounted waking up one morning unable to walk, with numbness and tingling in his limbs. After undergoing various tests, he was diagnosed with Guillain-Barre Syndrome.
Guillain-Barre Syndrome is an autoimmune disorder that damages nerves and weakens muscles. It can result in paralysis or even death. Although most people fully recover from the disease, it can leave permanent nerve damage. The disease primarily affects men over 50 and occurs in approximately 1 out of every 100,000 people annually in the US. Treatment typically involves plasma exchanges and immunoglobulin therapy.
Stevens expressed gratitude for the treatment he received and acknowledged the scary nature of the disease. He spent two weeks in the hospital, receiving life-saving care and stabilizing his condition. He is currently in the middle of his recovery process. The singer mentioned that he is undergoing intensive physical therapy and occupational therapy to regain strength and relearn how to walk. While it is a slow process, he remains hopeful and optimistic about his recovery.
Stevens shared that most individuals with Guillain-Barre Syndrome regain their ability to walk within a year, which gives him hope. He is determined to get better, and with the support of a great healthcare team, he remains committed to his journey. Stevens thanked his fans for their thoughts and prayers and gave a shout-out to all caretakers who work tirelessly to help others heal. He concluded with a message of well-being, joy, and love, signing off from his wheelchair.
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