- My son experienced an episode resembling a seizure at school.
- We consulted multiple doctors and underwent numerous tests over the years, but received no answers.
- After a second incident at school, I was determined to find someone who could assist him.
When my son collapsed and experienced what appeared to be a seizure in his first-grade classroom, I was en route to a hospital for a procedure. The teacher called and described the frightening sequence of events, including the possibility of a seizure, fainting, and loss of consciousness. He was taken by ambulance to the nearest hospital, which was different from the one I was heading to.
While preparing for anesthesia, I received sporadic updates about the incident. He turned pale, became confused, and others around him were filled with fear. He was scared, and aside from that, nobody knew what had happened.
Upon returning home, I followed the doctor’s instructions to schedule further testing. By Monday morning, I had made the necessary appointments for bloodwork, an MRI, and extensive questioning. However, the doctors were unable to determine the exact cause of the incident, attributing it to stress. With his father’s sudden departure from our home a month prior, tensions were high, and the uncertainty of our future likely weighed heavily on him. Determined to help my son, I pursued every possible solution.
Unfortunately, finding answers was not an easy task. Weeks turned into months of appointments, tests, and consultations. Despite undergoing various examinations at the age of 7, my son’s condition remained a mystery. His suffering intensified, and the longer we went without answers, the more dangerous and evident his symptoms became.
Courtesy of Candace Powell
During these incidents, my son would experience flushed cheeks, followed by dizziness and fainting. It didn’t matter if he was indoors or in the heat. He began suffering from migraines, violent nightmares, and sleepwalking. None of it made sense, and nobody was willing to provide the necessary assistance.
In my quest for answers, I independently researched every possible resource. Despite skepticism from those around me who labeled me as “overreacting” or “dramatic,” my intuition told me that the answers were out there, waiting to be discovered by the right person.
I revisited the basics, ruling out potential causes step by step. My son started therapy to cope with the stress of his father’s absence, and I optimized his bedtime routine and ensured he remained hydrated and well-fed throughout the day. Although the doctors did not specifically diagnose hypoglycemia, I made sure he always had a snack to prevent dizziness or fainting.
While some days these measures seemed effective, there were others when they didn’t produce the desired results. It took over four years to find a doctor who finally provided a diagnosis in February 2023. My son was officially diagnosed with postural orthostatic tachycardia syndrome (POTS), a condition related to reduced blood volume that encompasses all the symptoms he had endured during those miserable years.
Now, he has access to medication, education on preventing episodes, and tools to manage this disorder, although it’s not a guaranteed solution. As I look at him today, I can see the immense progress we have made. I cannot erase the pain he has experienced, both physically and emotionally, but he knows that I will always be there for him, ready to find a way to help whenever needed.
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